literature

RSD - Reflex Sympathetic Distrophy

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Literature Text

Everyday she deals with the pain

Another day, another fire

Her own personal hell

That's what she tells herself

She gets up every morning

Feeling worse than the last

Her body can't decide

Agony?

Burning hell?

Some days are so painful

She just wants to hide

And wish it all away

Judged by people who don't even know

What she has to deal with

She parks in the handicap

You can't see it but the short distance

Sometimes feels like a mile

She wears sweats and fuzzy socks

So as not to irritate her skin and stoke the flames

She can't use ice or cold to dose the fire

In fear it may spread and engulf her in a blink

Walking in her shoes would be like walking on coals

This is my MOM

She is Beautiful and I Love Her

And she has one Really Stupid Disease
I wrote this poem for my mom, who has RSD/CRPS. She got it when I was 5 years old in her right foot, then it spread to her leg and now is in both of her legs. So now she has had it for almost 15 years and she deals with it everyday. Earlier cases of RSD/CRPS happened during the Civil War to Soldiers who had to have amputations of their limbs. What happened was they would get their limb removed but would feel excruciating pain in the limb that they no longer had. This was called "Phantom Limb Syndrome." 

Reflex Sympathetic Dystrophy (RSD) and Complex Regional Pain Syndrome (CRPS)

is a chronic pain condition that can affect any area of the body, but often affects an arm or a leg. This condition features a group of typical symptoms, including pain (often "burning" type), tenderness, and swelling of an extremity associated with varying degrees of sweating, warmth and/or coolness, flushing, discoloration, and shiny skin. RSD is also referred to as "complex regional pain syndrome," "the shoulder-hand syndrome," "causalgia," and "Sudeck's atrophy."

November is RSD/CRPS Awareness Month!!!
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